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Mother is Shocked When Specialists Inform Her Baby Has Uncombable Hair Syndrome

By Andrew Alpin, 10 April

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The mother of a one-year-old boy who suffers from an extremely rare genetic disease known as uncombable hair syndrome is trying to raise awareness about the disease. The fact that her one-year-old kid suffers from uncombable hair syndrome was initially brought to Katelyn Samples’ attention on Instagram by a fan who had spotted a picture of her youngest kid, Lockland. But looking at his cheery pictures on the social media platform, you’d think Locklan Samples was just another typical adorable looking toddler with funky hair.

Lockland Samples with his peach fuzz of a hairstyle was a viral sensation before his Mom learned about her son’s condition

Of course, if you were to look at Locklan, you’d assume that he was born with his curly hair. That is, until Locklan’s mother, Katelyn Samples, received a private Instagram message from someone who knew exactly who she was and why little Locklan’s hair looked the way it did. The stranger inquired if Locklan was diagnosed with “Uncombable Hair Syndrome.” Katelyn’s heart sank when she saw the word “syndrome” in the message.

Lockland Samples with his peach fuzz of a hairstyle was a viral sensation before his Mom learned about her son’s condition

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Katelyn never suspected that Locklan may have had this syndrome since his hair was black when he was a baby

16-month-old Locklan Samples has “uncombable hair syndrome,” an exceedingly rare genetic disorder that affects only 100 people worldwide. When Locklan was a baby, his mother Katelyn Samples said his hair was black; as he grew older, it began to lighten.

Katelyn never suspected that Locklan may have had this syndrome since his hair was black when he was a baby

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Locklin’s elder brother has blonde hair, so Katelyn thought that Locklan’s hair would also turn out blonde eventually

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Since Locklan’s older brother Shep has blonde hair, the family didn’t question the transformation. However, it wasn’t until an Instagram follower inquired about the syndrome that Locklan’s parents agreed to have him checked.

She said-“You’re just going about your day thinking everything’s fine and that your kid might have curly hair, which does run in the family. And then to hear that there’s a rare syndrome associated with your kid — it was crazy.”

Locklin’s elder brother has blonde hair, so Katelyn thought that Locklan’s hair would also turn out blonde eventually

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