In Dari’s words Doctors told me Virsaviya had a really rare condition. But they said she won’t survive. ‘When I saw the first time how her heart was beating, of course to me it was something special. ‘It meant that Virsaviya’s alive and she can breathe and she can live.’ At the time, the girl’s pressure was too high to operate.
It has been two years since 2015 and both Mother and daughter share optimistic views that everything will go well. “I was really upset about that because they kept telling me she will die soon” said her mom. ‘It’s not easy for Virsaviya to live with her heart on the outside because it’s really fragile.
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It isn’t the heart born outside her chest which is the only problem. Her heart is just covered by a very thin layer of skin. She is missing some part of her diaphragm and part of her chest bones and abdominal muscles. She also has some of her intestines outside her body.
For six years Dari has been running between doctors in Russia but she was finally given hope by a doctor in Boston. She is a single mother and is in the process of collecting funds for her daughter’s operation.
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Both mom and daughter seem to be very close to each other, Bari, on the other hand, knows that her little fighter is much stronger than she is. She never likes to show what she is suffering from, but she has no choice she has to live with her heart outside which is a very fragile situation.
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Dari a Christian is deeply religious and hopes and prays that her spirituality and God will see her through this ordeal that her little daughter has to face. In one of her Instagram posts she writes “Jesus is our best protein our prayers and happiness always helps to handle hard situations, our happiness brings love and joy to other people lives because Jesus is in us, we are alive, we are happy, we are strong.