If there is a true symbol of a daily struggle against life’s odds, then its name is Virsaviya Borun Goncharova, the 7-year-old girl born with her heart outside her chest. Each time she giggles and laughs, her heart pushes out even further. Virsaviya had traveled all the way from Russia to the US earlier this year in hopes of undergoing a lifesaving operation.
The 7-year-old girl suffering from a rarest of rare conditions called Thoraco abdominal syndrome hopes to pull through from the operation. At present, her condition also called Pentalogy of Cantrell affects only 5 in a million people.
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1 Doctors warned her mother to prepare for the worst
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When this little fighter was born, her mother was told to prepare for the worst. Instead, she defied all odds and stunned doctors with her positivity and bubbly nature. In the US, Virsaviya is patiently waiting for her life changing surgery and is now on medication to lower her blood pressure. Cheerfully she told the BBC, ‘This is my heart. I’m the only one that has this.
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2 First came into the limelight in 2015
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Virsaviya’s story first hit the internet in 2015 and immediately went viral. At the time she was just six but as cheerful as ever. At the time her parents were at a loss as to what should be their course of action. They also began a funding project for Virsaviya where many responded.
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3 Virsaviya’s hobbies and past-times
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Virsaviya when interviewed said "I like to draw Jesus, ponies and angels, I don't go to the school and I don't go to the ballet but I want to do it at home." Virsaviya’s heart is outside her chest and the size of a little fist. It has been that way since birth.
Virsaviya is quite a spritely girl who told the BBC that “I just walk around, I jump, I fly, I run. Well I am not supposed to run but I love running.’
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